West Virginia Movement Disorder Alliance

Local Support for Life With a Movement Disorder

Living with a movement disorder may mean extra appointments, travel costs, therapy, or equipment your family was not prepared to pay for. WVMDA helps patients and caregivers in West Virginia, eastern Kentucky, and southern Ohio with grants, useful information, and local resources. If you need help, we want you to know support is available.

Helping Patients and Caregivers Across the Tri-State Area

WVMDA is a grassroots nonprofit founded by local physicians and families affected by movement disorders. We understand that many patients and caregivers face similar day-to-day challenges, even when their diagnoses are different.

Large national organizations play an important role in advancing treatments and searching for cures. Our role is local. We focus on the immediate needs of people in our communities while supporting education and research that can improve future care.

What We Do

Our work centers on three areas: patient grants, education, and research.

Patient and Caregiver Grants

The cost of living with a movement disorder can add up quickly. WVMDA grants may help eligible patients and caregivers with needs such as:

  • Travel to medical appointments and procedures
  • Medical and medication copays
  • Physical therapy
  • Power chairs, scooters, and other mobility equipment
  • Accessibility ramps
  • Other expenses related to receiving care and maintaining mobility

Each request is reviewed based on the information provided and available funding.

Education

Patients and caregivers deserve information they can understand and use. WVMDA connects people with educational resources, support groups, community activities, and organizations serving specific movement disorders.

We also host an annual Parkinson’s and Movement Disorder Symposium that changes location each year to spread knowledge across the state, focusing on low-access areas. The event brings patients, caregivers, healthcare professionals, and community partners together to learn more about treatment, support, and resources available in the region.

Research

WVMDA supports research aimed at improving the understanding and treatment of movement disorders. This includes work connected to the West Virginia Parkinson’s disease registry, resident research sponsorships, and other local research opportunities.

Supporting People With Different Movement Disorders

WVMDA serves people affected by a range of movement and neurological disorders, including:

  • Parkinson’s disease
  • Essential tremor
  • Dystonia
  • Multiple system atrophy
  • ALS
  • Huntington’s disease
  • Rett syndrome
  • Multiple sclerosis
  • Tourette syndrome
  • And others

You do not have to navigate the challenges of a movement disorder alone. Our team can help connect you with WVMDA programs and trusted educational resources.

2026 WVMDA Events

Our events give patients, caregivers, medical professionals, and supporters a chance to come together. The money raised helps WVMDA provide grants for needs such as copays, physical therapy, transportation, mobility equipment, and home ramps. These fundraisers help more people in our area get support when they need it.

WVMDA Tour Golf Tournament

August 22, 2026 | Creekside Golf Course in Lavalette, West Virginia

The WVMDA Tour is our annual golf fundraiser at Creekside Golf Course. Golfers, sponsors, and volunteers come out to support the patient grant program and spend the day with people who care about the same cause.

WV Parkinson’s and Movement Disorder Symposium

October 23–24, 2026 | Tamarack Conference Center in Beckley, West Virginia

Friday’s sessions focus on patients and their caregivers, while Saturday’s events focus on healthcare professionals with CME available; all are welcome either day. Click the link below for more information and the registration link.

Thank You to Our Partners

Our sponsors and community partners help make WVMDA’s grants, events, education, and research possible.

Continuim Partner

Community Impact Partner

Help Us Lighten the Load

When you donate to WVMDA, your support stays close to home. It helps provide patient grants, educational programs, community resources, and research for people living with movement disorders across the Tri-State area.

Whether you donate, volunteer, attend an event, or become a sponsor, your involvement helps us continue this work.

Not Sure Where to Start?

Send us a message if you have questions about applying for a grant, finding resources, attending an event, volunteering, or becoming a sponsor.

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